周铭的故事

姓名: 周铭 生日: 2011年10月16日
性别: 年龄: 5岁零8个月
地区: 河南平顶山 (已有外国收养家庭)  阶段: _已被领养
状况: 肠瘘、肠梗阻、重度营养不良、低钾、低钠 
        “肠瘘、肠梗阻、重度营养不良、代谢性碱中毒、低钾血症、低钠血症、肠旋转不良!”很难想象当这么多的病集中在一个不足30天的孩子身上会是一种什么状况,周铭就是这样的一个可怜的孩子。2011年12月3号我们的保育员和热心的志愿者从西客站接到这个来自河南平顶山的孩子。弱小、漂亮是周铭给大家的第一印象,继而是担心和祝福。
        周铭2011年10月27日被发现弃于河南省平顶山市,当时皮肤黄染明显,右侧腹部有一纵行手术切口,尚未拆线。发现后送到当地医院治疗,孩子的情况日渐不佳,无奈之下我们接到北京,直接入住八一儿童医院,是天使之家救助的第103个宝贝。在经过88天的漫长治疗之后,周铭肠瘘治愈,肠梗阻治愈;重度营养不良好转,低钾、低钠治愈,肠旋转不良也治愈。
        周铭能够活下来是个奇迹,但是这个孩子今后的养育也成了问题。出院时医生千叮咛万嘱咐,说这个孩子因为二次手术,肠子非常短,营养不容易吸收,所以我们正在给周铭征集纽康特奶粉:参见http://www.redbaby.com.cn/search?keyword=%E7%BA%BD%E5%BA%B7%E7%89%B9,感谢各位对周铭的关注,让我们共同见证这个漂亮帅气男孩的成长!

 

救治历程

2015-10-20: 宝贝4岁了

周铭四岁了!他的父母又发来照片!

 Dear,

 
I'm sorry that it has taken us some time to update you on Olles progress and provide you with some updates
on Olle. Anyhow this friday was his 4th birthday and he has been so excited and playful before and during this occasion. He loved it so much to be in focus and today we had a children´s celebration as well.
He has a new favorite - Super Mario Bros - he can´t stop talking and playing with him....
WE have also some good news around his height, in Sweden we follow up the children when they are 4-years of age and he has grown to 98,5 cm. When we came home from China he was only 80 cm - so he is improving a lot. 
In regards of hi stomach - the scar have been so fine after the operation and the stomach is also working much better vs before.
He is still very open and he has started to request to play with his friend´s from pre-school on weekends. he also loves swimming and jumps like a maniac into the swimming pool, but he still can´t swim.
He is also very fond of his running-bike in which he runs around with on the street and spreads joy.
 
Please enjoy following pictures and cie


亲爱的,
 
很抱歉这么久没有联络,跟你们说说周铭最近的进步。上周五是他的四周岁生日,从之前好久他就开始为此而激动。今天我们给他举办了一个小小的生日会,他特别开心成为聚会的主角。
他现在有了一个新宠(玩具)——超级马利奥兄弟。他不停的跟他说话跟他一起玩儿,根本停不下来~。
关于他的身高也有好消息哦!在瑞典,从孩子4岁起我们会开始跟进他的身体指标,周铭现在已经有98.5厘米高了。我们从中国回来的时候他才只有80厘米,他真的长高了很多!
关于他的肠胃,手术以后的疤痕恢复的很好,肠胃功能也比以前好了很多。
他依然特别开朗,周末开始要求跟他幼儿园的朋友一起玩儿。也依然超爱游泳,像个小疯子一样的往泳池里跳,虽然他还并不会游泳。
他还非常喜欢他的自行车,在街上骑来骑去,特别开心。

希望你们能喜欢这些照片~
 
2015-2-25: 宝贝3岁零4个月了

新年快乐

 Dear!

Hope everything is fine with you!

Just wanted to wish you a Happyw  Chinese neyear. Today we ha celebrated the new year with another family who also have adopted a boy from China. We had Chinese food and Lucky cokoies. Olle is not so fond of dumplings since his surgery, but today he loved the spring rolls and the nudels very much.

Everything is fine with us. Olle loves his preschool and he is well from his surgery. We have winter now, but no snow, just rainy and windy. Not so nice...

In a few weeks we will go to the northern of Sweden to ski downhills. Olle is very exited about that. We will see how he likes it when we get there.

I just have one picture of Olle in this computer No worry about the nose. He fell in the snow just before the picture was taken. I can send some more in a few days.

Take care!

With love

Olle, Isak, Jessica and Hakan

(翻译仅供参考)

亲爱的!

希望你们一切都很顺利!

写这封信就是想对你们说春节快乐!今天我们和另一个收养了中国男孩的家庭一起庆祝了春节,我们吃了中国菜和幸运饼干。自从肠胃手术后周铭就没那么喜欢吃饺子了,但今天他特别喜欢吃春卷和面条。

我们一切都很顺利,周铭超爱他的幼儿园并且已经彻底从手术中康复了。我们这里终于是冬天了,但还是没有下雪,只是下雨和刮风,感觉不怎么好……

过几周我们会去瑞典北部的雪山滑雪,周铭非常期待!我们也迫不及待的想看到他到达那里以后的开心的样子了。

这个电脑里只有铭的一张照片,先发给你们。不用担心他的鼻子,拍照之前他刚刚在雪地里摔了一跤。过几天再给你们传些照片哈。

保重!

爱你们的周铭一家~


2014-11-29: 宝贝3岁零1个月了

周铭家庭来信

 Hi there!

 

No worries, hi is just fine. We left the hospital this wednesday and he is already eating almost everything. Tomorrow we will have dumplings for lunch. He loves it!!!

 

Here comes the pictures.

 

你们好!

 

不用担心,周铭一切都好。我们周三出院回家的,现在他已经基本什么都可以吃了。明天中午我们要吃饺子,周铭最爱饺子啦!!

 

照片来喽~










2014-6-10: 宝贝2岁零8个月了

远在瑞典的周铭家庭来信了

 

Hi Angelhome!!

 

 

 

 

 

 

 

 

You are right that it has been too long since we wrote to you. We´re sorry for that. The weeks are running too fast and our two boys are keeping us busy. Ming is just a lovely little boy and we love him very much. We can´t help still feeling so lucky that we got him as our child. We are sorry that you still miss him so much and hope that you feel better when you know that he is happy and developes as he should.

 He is now talking very good Swedish. The only Chineese words he is still us is ”tutu” and ”dao”. He loves his rabbit that he got from Angel´s Home and he sleeps with it every night. He also likes to look in his photo book that we got and talk about what he did as a baby. We look in it every day together, but we don´t know what he remember from it.

 

 

 

 

 

 

 

 

He likes being on the playground and also bathing, both in the ocean and in the bathtub. He likes reading books and plays a lot with his toys. He is a very happy child and everyone tells us that he is always smiling. He has shown us that he sometimes is stubborn and has some temperament.

 

He still likes to watch Teletubbies. But have also found some other movie favourites like ”Builder Bob” and the ”swedish ghost story of Laban”.

 

We have been some times to the hospital to check his stomach. The doctors have decided that he will have a new surgery to put the gastronintestinal in the right position, they turned out to be somewhat twisted and also had grown into the scar from the previous surgery. It can have had an influence on his growth. We have also investigated his growth hormones and are expecting answer on that after summer. It can also be a mix. But he Is not suffering or have pain at all because of this, but as said It could have an affect on his growth. It´s a pretty common surgery done here at our hospital although It´s of course rather complicated. But he has grown 5 cm. since we got him, he´s now 84.7 cm long and is running around with his lovely smile.

 

We would love to have the Swedish family´s name from the boy that was recently adopted from Angel´s home.

 

Today we have been out and fishing crabs, he found them to be very funny, but he didn´t have the patience enough, although he got the biggest one by himself.

He´s fond of sweet´s and wants to have ”Saturday candys” every day, but of course that will not happen – just one day a week.

 

He has become interested to go to the bathroom himself mostly together with his brother, so hopefully we can get rid of the dipers by the end of the summer.

 

 

 

 

 

 

 

 

 

 

Here are some photos showing our little prince…..

 

With love,

Håkan, Jessica and Olle (Ming).

 

(翻译仅供参考)

 

“Angelhome”你好!

     正如你所说的好久没有给你们写信了,非常抱歉。时间过得飞快,这两个小男孩也着实让我手忙脚乱。周铭是个非常可爱的小孩,我们非常非常爱他,能成为他的父母是我们最幸福的事!听说你们非常想念他我们也很难受,希望他的笑脸能让你们感觉好一些,他每天都很开心,且进步飞快!

    现在他已经说着流利的瑞典语了,唯一还记得的汉语是兔兔“Dao”(我猜应该是)。他最爱他从天使之家带来的小兔子玩偶,每天晚上睡觉都要搂着它。他也非常喜欢看你们给他带来的相册,边看边给我们讲他小时候的故事。我们每天都会一起看那些照片,但不知道他是不是还真的记得那些事。

      他喜欢在操场上玩儿,也喜欢洗澡,无论是在海边还是在浴缸里。他喜欢读书,也喜欢玩他的玩具。他是个非常快乐的孩子,每个人都告诉我们他总是在开心的笑。但是有些时候也会耍耍他的小脾气。

       他依旧很喜欢看天线宝宝,最近又迷上了《Builder Bob》和《瑞典拉班的鬼故事》。

      我们已经几次带他到医院检查他的胃肠问题,医生建议给他做一个胃肠道复位手术。由于之前手术形成的疤痕,他的胃肠道现在有些扭转,这有可能影响着他的成长。我们还给他做了有关生长激素的检查,大概在夏天之后能拿到结果。这些因素都有可能影响他的成长速度,虽然现在他还未感觉到任何不适,但我们不希望未来他会受到这方面的困扰。手术虽是常见手术,但并不简单。不过他已经比刚来瑞典时长高了5厘米,现在已经有84.7厘米高,并且时刻带着他招牌式的甜美笑容,活力十足的跑来跑去。

       我们特别想知道有关天使之家即将来瑞典的那个男孩父母的消息。(二小吴振会)

       今天我们出去钓螃蟹啦!周铭觉得螃蟹非常好玩儿,但他似乎还不是那么有耐心,虽然最大的一只就是他一个人钓的!

       他特别喜欢糖果,他自己希望每天都是星期六糖果日,但是很遗憾,这个节日每周只有一天哦。

       他现在特别喜欢跟他的哥哥一起洗澡,希望过了这个夏天他能够改掉这个习惯。

       接下来该是我们小王子的照片出场啦……

 

       爱你的 铭爸铭妈 还有Olle

 


 

 

 

 




2013-11-11: 宝贝2岁零1个月了

有自己的爸爸妈妈了

 2013年11月11日,周铭你未来的人生不会在孤单,有爱你的爸爸妈妈与你同在。除了不舍,还有深深的祝福。

2013-8-25: 宝贝1岁零10个月了

周铭成长报告

周铭(病情:肠瘘,肠梗阻,重度营养不良,低钾,低钠)201112月来到天使之家,至今已经20个月,110个月。

在天使之家的活动情况:

1、饮食情况:730吃饭(根据每日配餐)

1000喝水200ML

1130吃饭(根据每日配餐)

1430起床喝水200ML

1600喝水200ML

1730练习吃饭(根据每日配餐)

2、活动情况:

700起床

8001100练习走路,说话

12101430午睡

14301730活动(同上)

3、成长情况:

201112月份直接住入八一儿童医院进行了88天的治疗,肠瘘与肠梗阻手术之后完全治愈,在日常患儿喂养中注意其营养配餐,低钾与低钠已有好转。

201112月份接到天使之家至今已经1岁零10个月,在姐姐们的悉心照料之下,周铭体重已经达到9.5KG,身高74.5CM,胸围48M,头围48CM,已有14颗牙齿。

动作发育:目前周铭学会了独立行走,吃饭需要有人喂,自己可以喝水;

 

2013-7-15: 宝贝1岁零9个月了

周铭近况

        一岁九个月的周铭身高只有72.5厘米,仅仅相当于10个月的正常男孩的身高。应周铭收养家庭的要求,我们带着他分别去了北京306医院以及北京协和医院看了内分泌专家,两边的大夫都给出了如下意见:
 
1、根据体格检查(身体比例、头围、胸围等等),周铭除了个子比较矮以外,没有任何矮小症的症状;
2、个子矮可能由于先天性身体状况不好(肠瘘、肠梗阻),并且做过相关的手术,因此发育状况会晚于同龄的其他孩子;
3、建议密切监测孩子的身高发育状况,一般情况3--4岁后如果还比正常孩子矮很多,到那时检查确诊还来得及,也才有必要进行干预;
 
      我们把医生给的意见已经传达给周铭的收养父母,但愿周铭的收养不会因为个子的原因而搁浅,一定不会的!祝福周铭! 

2013-2-2: 宝贝1岁零4个月了

周铭最新成长状况

随着姐姐们的悉心照料,周铭看起来胖了许多,尤其是大脸蛋。大家都叫他“懒羊羊”,因为平时总表现出一幅事不关己高高挂起的,与世无争的样子。可是面对没事的诱惑,他还表现的异常兴奋。
他是个性格外向的孩子,不认生也不不挑人。只要抱抱就貌似很知足的样子,对于和自己亲近的姐姐则表现的异常的活跃,又是“亲亲”、又是眯着大眼使劲乐呵的。他现在语言方面也是颇有进步,会叫“豆豆”、”阿姨”、“拜拜”、还会做出飞吻的动作。能听懂大人的语言,能用表情或简单的肢体动作标示自己的喜好。
他仰卧时,会侧翻,会两侧转头,会伸曲胳膊和腿。同时仰卧时会转侧卧、拉起坐时头部不会后仰。平时给他一个玩具会自己拍打,摇摇铃。周铭现在也会自己抱着奶瓶喝奶了,总之周铭的成长状况是越来越好了。
目前周铭也已经有国外家庭关注,如果没有什么特殊变化的话,这个孩子很快就能有自己的爸爸妈妈了,祝福周铭!
2012-11-1: 宝贝1岁零1个月了

周铭正在茁壮成长!

在社会各界爱心人士的捐助下,周铭在天使之家茁壮的成长,现在已经长成一个漂亮的小伙子了。