莎福妹(福妹)的故事

姓名: 莎福妹 生日: 2010年1月17日
性别: 年龄: 7岁零5个月
地区: 福建(已启动涉外收养)  阶段: _已被领养
状况: 脑瘫 

莎福妹,女,2010年01月17日出生,是福建沙县的孩子,2011年05月13日来到天使之家,是寄养点第85个孩子。福妹很乖巧可爱,目前在九龙花园天使之家做康复。

 

 

救治历程

2017-6-8: 宝贝7岁零5个月了

妹妹的新消息

  莎福妹,我们现在应该叫她Madison了,她的爸爸妈妈每次发邮件都诚意满满,会详细地介绍妹妹的进步、变化、状态等等,让我们为之感动。

  跟大家分享一些妹妹新的消息:

  她现在长高了,胃口也很好,成天吵着要吃面^^ 她已经会写自己的名字Madison了,尽管歪歪扭扭的,但完全能认出来。她能数到12,之后就会有点糊涂。

  她在学校的学习还是比较落后,我们还会为她做更多的检查,但这丝毫不影响她在学校成为大家的开心果,每个人都会被她的乐观和喜欢交朋友所感染。

  她现在说英语说得非常棒,同时她还能记得一些中文。

  她走路还是需要带护具,我们还为她准备了一个头盔,避免她受到惊吓时摔伤自己。

  她现在没有学游泳了,而是在学跳舞,她非常喜欢跳舞。她还是一样得爱哭爱笑,还是一样地黏自己的姐姐们。

  最近她取得了非常大的进步,她可以双脚同时跳离地面了,这太让人惊喜了。

  

  

  看到她可以自己双脚跳,我们也非常意外并为她开心。信中我们看到她还是一样地爱哭爱笑,让人不禁想起过去的时光,乐观开朗的妹妹曾为我们带来了很多快乐和感动,希望她越来越好。她真是很幸运,每一个被收养的孩子,被疼爱的孩子都非常幸运。

  • “傻丫头”
    “傻丫头”
  • 过生日
    过生日
  • 跟姐姐在一起
    跟姐姐在一起
2015-9-28: 宝贝5岁零8个月了

莎福妹长长的家书

 Dear Eva and Angel Home Friends,

We were so pleased to hear from you.  We have been thinking of the Angel Home staff these past six months, knowing how difficult it must have been to have spent four years caring for Sha Fu Mei, and then having her leave and go to live in a different country with a new family.  We were unsure how to contact you, so we are glad you e-mailed us.  We asked if our six-month report to our adoption agency and China could also be sent to the Angel Home, but we did not know if this would happen, so it is good that we can e-mail.  We are sorry it took a while to get back to you—we have been *very* busy with medical appointments for her this summer.

First, we want to thank you for all that you did to help Sha Fu Mei over the four years that you cared for her.  It is clear that she received excellent care and that she was loved.  It is so amazing that she went from being unable to crawl, stand, sit firmly, or speak, to being able to sit, stand, walk, and speak.  You have our deepest gratitude for helping her to gain these abilities.  You kindness and dedication gave her a new life!

We gave Sha Fu Mei a new English name and now use part of her Chinese name as her middle name, so her full name in America is now: Madison Fu Mei Romeo.She referred to herself often as Mei Mei when she came to us, so we still call her Mei Mei as a nickname.

We are sending pictures of her that were taken over the last six months.  You probably already know this, but Dad is named Jeffrey, Mom is named Betsy, her oldest sister is Stephanie (age 9), and her second oldest sister is Rachel (age 6).  She also has two adult brothers in their late twenties and early thirties who live on their own in other cities.  Their names are Anthony and Nicholas.

We will give you some answers to your particular questions and then give you some more information about her medical progress and general daily life.  Overall, she is a happy girl and is adjusting very well!  We all love her so much!

Can she speak English now?

Yes, she can speak English amazingly well for the short time she has been here.  In the last two months her ability to speak and understand English has grown tremendously.  She understands almost everything we say now, and she speaks in full sentences.  She says things like, “Have a good day at work, Mommy,” or “Help me sit on the couch.”  Teachers and friends often mention how well Madison Fu Mei now speaks and understands English.  She knows a few of the letters in the English alphabet now, too.  We are trying to maintain her fluency in Mandarin Chinese, also.  Betsy has been learning Mandarin using audio lessons for the past year, and she speaks Mandarin (a very beginner’s version of it) with Madison every day.  Madison Fu Mei also attends Mandarin school one afternoon per week from September-mid-June.  We have also made friends with some Chinese-speaking families, so we hope that will help, too.  Madison Fu Mei also likes to watch Chinese children’s cartoons on YouTube (with Mom supervising).

Does she talk as much as before?

Yes!  She is a big talker—she has lots to say and has lots of questions about what is going to happen each day and where everyone in the family is.   Sometimes she will say the same things or ask the same question repeatedly over a short period.  We are not sure if this is due to adjustment, anxiety, language learning, or her medical condition.  She is clearly very intelligent and has an excellent memory for many things.

Does she persistent and insist what she wants as before?

Yes!  She is very vocal about what she wants/doesn’t want and what she likes/doesn’t like. She can be very strong-willed and stubborn, so we try to find creative ways to make cooperation fun.  Her persistence is a good thing—it means that she will keep trying, which will be good for her ongoing recovery.

Does she go to kindergarten? 

She attended a wonderful Montessori preschool from March through July (the same one her sisters went to).  In September, she will attend kindergarten at our neighborhood elementary school.  Her older sisters will also go to this school.  We have a special plan set up for her with the school so that she will get extra help with writing (her tests showed a significant fine-motor delay) and learning English.  She will receive extra adult assistance and supervision with getting around the school, using the toilet, getting lunch, playground time, etc.  She is very excited about going to her new school.

Does all the kids accept her? 

Yes.  Her sisters and their friends love her, and she was well-liked by the children and teachers at her preschool.  We have only had one incident of playground teasing (due to her disability), and Mom made sure the children who did that stopped!

How about her right arm, any improvement?

Yes—she is showing some improvement.  She is having occupational and physical therapy, and she improves with each treatment.  We also do play therapy activities at home and encourage her to use her right arm and hand.  [Note:  her oldest sister has a brachial plexus injury, so we are used to encouraging use of an injured arm.]

The biggest improvement came after she had BOTOX shots in her right arm and thumb to relax some overly tense muscles.  This is allowing other muscles to move.  We are doing these through a neurologist at a children’s orthopedic hospital, so she is getting excellent care.  A few weeks after the BOTOX shots, she participated in a therapy series with other children who have the same condition.  She wore a temporary cast on her left arm, which forced her to use her right arm more, and helped “wake up” that side some.  She still lacks awareness of her right arm/hand (she does not think to use them on her own much), but when we prompt her, she can raise her arm more and open her hand a little.  She now has some grip strength in her right hand so that she can hold small, lightweight objects.  She wore the cast day and night for three weeks, which was very frustrating for her, but the therapists planned fun activities, and the results were worth it.  We will do this treatment again next year, if it is available.  In the meantime, we will continue with her therapy.

There are too many things we want to know about her. When she came to Beijing from Fujian Province, she is only one year old, cannot crawl, cannot stand, cannot speak, cannot sit firmly, in the short four years time, Sha fumei learned to sit, stand, walk, speak. 

We will continue to share information with you.  She is having additional evaluations by a pediatric neurologist, and in September she will have an MRI.  This could possibly tell the doctors how she came to have cerebral palsy. 

Although she is easy to cry and cry loudly, you accept her to your family, we are not used when we cannot hear her talking and talking.

She does still cry easily and loudly, but we are getting better at soothing her, communicating with her, and helping her feel better.  She wakes up each morning happy and eager to start the day, which is wonderful.

We can see why you miss her and why you would miss her talking.  She is adorable and has quite a personality—and lots to say!

We only hope Meimei can live happily. Thank you for giving a Cerebral Palsy kid a family. We hope you can send us some photos.

She is happy and doing well.  Every medical person she has seen thinks she has lots of potential and will continue to improve.  We all love her, and she enjoys having a family and sisters to play with.

Thank you for your kinds words.  She adds so much to our lives.  We are sending photos.

We have the pictures you sent of Li Li, Dang Yun Wu, and Xu Yan Ru in a photo album for Madison Fu Mei.  She enjoyed looking at those recently and remembered each of these caregivers with fondness.  She wanted to look at the pictures again and again. We are sure she remembers other caregivers at Angel Home, too.

Here is longer update on how Madison is doing, with more medical details:

Her doctors in the U.S. have confirmed her hemiplegia diagnosis, although they describe it as hemiplegic cerebral palsy.  She is quite healthy and active.  She is a good eater, but still quite slender.  We make a special effort to have foods that she likes (right now, she often asks for noodles, soup, or rice, and she likes lots of fruits and vegetables).  Her pediatrician thinks she burns extra calories due to her cerebral palsy.

Madison continues to have weakness in her right leg.  She now wears a day brace on her right leg to improve her stability, and a night brace on her right leg to keep the muscles from tightening.  Because of her tendency to fall, We have purchased a light, soft-shell helmet that she wears on the playground.  She also wears a soft hand brace to help the position of her right thumb.

An educational evaluation this spring determined that Madison is considerably delayed in her fine and gross motor skills and also in her self-care skills.  Through active play and therapy, her fine and gross motor skills are improving.   Madison has been diagnosed with astigmatism in both eyes and now wears glasses which help with her coordination, movement, and daily activities.  She now falls less because of the glasses.

Madison took part in “constraint camp” at a children’s orthopedic hospital in July.  This is an intensive but fun occupational therapy class for children with Madison’s condition.  It met three mornings a week (two hours per day) for two weeks.  In this camp, the children wear a temporary cast on their dominant hand and use their non-dominant hand for fun activities.  This forces the non-dominant side (Madison’s right) to “wake up.”  She then wore the cast at home for one additional week, and we put it on for a short time most days to keep her improving.

To prepare for this camp, Madison had BOTOX shots in her right forearm and right thumb.  The shots have relaxed the tight muscles in these areas, and she is using her right arm more and opening her right had a little more.

Madison had a basic neurology exam this spring, and the doctor thought that Madison’s movements were not typical of a cerebral palsy patient.  She thought there might be something else going on besides the cerebral palsy, but because of Madison’s age, it is hard to tell what.  A physical therapist has wondered if Madison might be having very small seizures, which could be contributing to her falls.  Madison saw another pediatric neurologist in August and is scheduled to have an MRI in September.  Her pediatric neurologist does not want to speculate on her condition until he sees the results of the MRI.  He will be doing a thorough series of tests to asses her condition.

In all, Madison is doing quite well for a child with her condition, and every doctor and therapist we have seen thinks she has great potential for improvement!  She is a very persistent and determined little girl, which is helping her progress. 

Madison loves being part of the family and looks forward to people coming home if they have been gone.  She loves to wave and give kisses and hugs good-bye, too (and she cries if someone forgets to give these).  She loves to play with her sisters, and when things are going well, she shows kindness to them and is willing to share.  Madison loves both her parents, and has now bonded with both of us.  When given the choice, she wants Mommy to help her with self-care activities and bedtime.  Madison proudly tells other people that we are her family, and she loves to show new friends the pictures of her and her sisters that are in Mommy’s purse.  When she is frightened, she goes to a parent for comfort, and she comes to us to have her needs met.  She describes us as Mama and Daddy and big sisters.  She also says our names often.  She likes to be held by her parents and expresses affection to everyone in the family.

In occupational therapy and preschool, she has made progress with her fine motor skills in drawing a cross, a circle, and a stick-figure person (standard symbols used when assessing fine motor skills).  She has also made progress in using scissors.  She could not use them at all when she arrived, and now she can “snip,” although she needs help to cut all the way across a paper.  She can also put beads on a pipe cleaner, something she could not do when she arrived.

Madison loves to eat, play with her sisters, take baths, play at the park, play in the sandbox, ride her plasma scooter, color and draw, play with her dolls, and play with anything electronic or that makes sounds.  Madison has also started to take private swimming lessons, and she is learning to ride a tricycle (with Velcro-strap pedals).  She is interested in books, and enjoys hearing stories and looking at the books we read to her.  She also likes music and dancing (she loves to have a “dance party” to the ABBA song “Mama Mia”). 

We enjoy Madison’s intelligence, her sense of wonder about the world, and her spunky, playful manner.  She really lights up the room with her laugh, her goofy sense of humor, and her cheerful personality.

Madison will be attending full-day kindergarten starting in September 2015 at our neighborhood public elementary school, which is an excellent school.  Her sister Stephanie (3rd grade) and her sister Rachel (1st grade) will also attend there.  This will be a new school for all the girls.  Stephanie and Rachel’s previous elementary school was not a good fit for Madison due to many steep flights of stairs.  For a variety of reasons, having the girls go to two different schools would not have worked, so all of the girls will be at this new school this fall.  Stephanie and Rachel miss their old school, but are optimistic about the change.

Madison has been approved for special education services due to her orthopedic impairment, and an Individual Education Plan (IEP) has been written to provide her with services beginning on the first day of school.  Madison will be placed in a regular kindergarten classroom, and will also receive up to 60 minutes per week of individual instruction in written language.  She will have special adult assistance with toileting, recess, lunch, PE, and transitions.  She will be given extra time for large group transitions and strategic placement in line.  She will also be evaluated by physical and occupational therapists in the classroom during the year.

Madison’s new elementary school is well aware of her English as a Second Language (ESL) status and plans to integrate Madison into the normal classroom environment with additional support services to help accelerate her learning.  We have met with her after-school care providers, and they are willing and able to accommodate her needs.

Madison’s understanding of English continues to improve exponentially.  We are able to communicate our directions to her, and she will respond to these instructions in an appropriate manner.  There are still times where her actions are more toddler-like (especially when tired).  Mom and Dad are learning to recognize these signs and modify instructions to suit the situation.  After being here just five months, she is speaking in full English sentences. 

Thank you so much for your care and concern for Sha Fu Mei.  Our lives are very busy right now taking care of her and her sisters, but we will continue to keep in touch whenever we can.

Sincerely,

亲爱的Eva 和天使之家的朋友们,
很高兴收到你的来信。在这过去的六个月里,我们一直想起天使之家的员工,理解他们四年来照顾莎福妹有多难,以及送她离开,到一个不同国家的新的家庭里生活。我们不知道如何联系你,所以我们很高兴收到你的邮件。我们问过是否我们给领养机构和中国的六个月领养报告也可以发给天使之家,但不知是否可以。所以能发邮件很好。很抱歉没能及时回复你,这个夏天我们一直忙于带她看病。
首先,我们要感谢你在这四年中对莎福妹的照顾,很明显,她受到了很好的照顾,而且被爱。她从不能爬,不能站,不能坐稳,不会说话,到能坐,能站,能走,能说话。我们深深地感谢你,帮助她获得这些能力。你的好心和奉献给了她新的生命!
我们给莎福妹起了新的英文名字,用她的中文名字做她的中间名,现在她的美国名字全称是:
Madison Fu Mei Romeo
她来我们家时,称自己是妹妹,所以我们也叫她妹妹,做为小名。
我们发些六个月里给她拍的照片。你应该已经知道了,爸爸叫Jeffery,妈妈叫Betsy,大姐叫Stephanie9岁),二姐叫Rachel6岁),她还有两个成年的哥哥,一个二十多,一个三十出头,都住在别的城市,他们是AnthonyNicholas.
我们会回答你的问题,然后分享她的医疗进展,以及日常生活。总的来说,她是一个快乐的孩子,而且适应得很好!我们都很爱她。
她能说英文了吗?
是的,在这么短的时间里,她的英文说得好得让人吃惊。在过去的两个月,她说英文和理解英文的能力增长迅速。她几乎能听懂我们说的每件事,而且能说完整的句子。她会说:"今天工作愉快,妈妈""帮我坐沙发上." 老师和朋友们经常说,莎福妹现在能说很好的英文,并听懂英文,她现在也认识一些英文字母。我们也努力保证她中文的流利。Betsy 在过去的一年中使用有声教程学习中文,她每天和莎福妹说中文(很初级的版本)。从9月中到6月,莎福妹每周有一个下午去上中文课,我们也和说中文的家庭交朋友。希望这也能帮助。莎福妹也爱在YouTube上看中国动画片(在妈妈的监护下)。
她像以前一样爱说话吗?
是的!她可能说了,她有好多话说,有好多问题关于每天发生了什么?每个家庭成员在哪里?有时她在很短的时间里重复问同样的问题,说同样的话。我们不知道,是由于不适应,焦虑,语言学习,或她的治疗状况。她很聪明,对很多事有很好的记忆力。
她还像以前一样固执和坚持自己想要的吗?
是的!对于她想要的不想要的,喜欢的不喜欢的,她都会说出来。她很坚决很固执,所以我们努力要找到独特的办法制造合作的乐趣。她的坚韧是好事,说明她一直在尝试,对她将要进行的康复有好处。
她上幼儿园了吗?
她参加了一个很棒的曼托索尼学前班,从三月到七月,和她姐姐同一个学校。九月,她会上我们附近的小学的幼儿园,她的姐姐们也会上这所学校,我们和学校为她制定了特殊计划帮助她的写作和英语学习,(测试显示她有严重的精细动作的迟缓),在校园里会有成年人对她进行特殊的监护和帮助,上厕所,吃午饭,操场玩耍,等等。对于上新学校她很兴奋。
所有孩子都接受她吗?
是的!她的姐姐们和她们的朋友都很爱她,她学前班的老师和孩子们也很喜欢她,只有一次在操场被取笑(因为她的残疾)妈妈已经制止了孩子们对她的欺负。
她的右手怎样了?有进步吗?
是的-有进步,她在接受专业的理疗,每次治疗都有进步,我们也在家做些趣味性的治疗,鼓励她使用右臂和右手。(注:她的大姐有臂神经丛损伤,我们习惯了鼓励孩子使用受伤手臂)
最大的进步源于她接受了肉毒杆菌注射,放松她右臂和姆指过度紧张的肌肉。这使得其他的肌肉可以活动,我们通过儿童整形医院的神经科医生来做的,所以她得到了很好的照顾,肉毒杆菌注射后的几周,她和其他有相同症状的孩子参加了一个疗程,她的右臂戴了一个临时性的铸件,强迫她更多的使用右臂,帮助唤醒右侧。她还是对她的右臂和右手缺乏觉知,不会自发的使用它们,但我们要求她时,她会举起手来,稍微张开右臂。现在她的右手有些握力了,可以握小的,轻的物品。她白天夜晚的戴了三周的铸件。对于她来说是很沮丧的,但理疗师安排了一个些有趣的活动,从结果看是值得的。如果可以的话,明年我们还做这个疗程。同时,我们会继续她的治疗。
有太多的关于她的事我们想了解,她从福建到北京时,只有一岁,不会爬,不会站,不会说话,坐不稳,在短短的四年间,莎福妹学会坐,站,走,说。
我们会继续分享她的信息。九月儿科神经医生会给她做一个额外的评估,会做MRI.
这有可能告知医生她是如何患脑瘫的。
她现在还是爱哭,哭声很大,但我们已经越来越会安慰她,和她沟通,帮助她感觉好些。她每天早上起床都很高兴,急于开始新的一天,这很棒。
我们知道为什么你们想念她,想念她的话多,她很可爱,很有个性,而且有很多话说!她很快乐,生活的很好,她看的每个医生都认为她很有潜力,会不断进步。我们都爱她,她也很享受有一个家,有姐姐们陪她玩。
谢谢你的好意。她给我们的生活带来很多乐趣。我们会寄照片来。
在你给莎福妹的相册里,有Li Li, Dang Yun Wu, Xu Yan Ru, 最近她很爱看照片,而且记得每一个她喜爱的保育员,她反反复复地看这些照片,我们相信她也记得天使之家的其他保育员。

她在美国的医生确诊了她的偏瘫症状,虽然他们把它描述为偏瘫性脑瘫。她很健康活泼,她吃得很多但仍然苗条。我们努力寻找她喜欢的食物,(目前为止,她经常要求吃面条,汤和米饭而且喜欢吃大量的水果和蔬菜)。她的儿科医生认为她的脑瘫会让她消耗额外的卡路里。
莎福妹的右腿还是很弱,白天她会戴一个支架增加右腿的稳定性。晚上会戴一个支架不让肌肉紧绷。由于她容易摔倒,我们给她买了一个轻的,软壳的头盔,在操场上玩耍时戴。她还戴一个软的支架在右手,帮助她右手拇指的固定定位。
这个夏天给莎福妹做的教育评估报告显示她的精细动作和粗大动作明显滞后,自理能力也明显落后。莎福妹被诊断为两眼散光,现在她戴眼镜帮助她协调移动和日常活动,由于戴了眼镜她摔倒的次数少了。
七月莎福妹参加了儿童整形医院的约束营,这是针对莎福妹这种情况的儿童的高强度的,有趣的专业治疗课程。课程持续两周,每周三次,每次两个小时。在约束营,孩子们戴临时性铸件在他们的主要使用手臂,而用非主要使用手臂做有趣的游戏。这可以帮助唤醒非主要使用的一侧(莎福妹是右侧)。之后她在家又戴一周,每天我们都会给她戴一段时间,帮助她改善。
为了准备约束营,莎福妹注射了肉毒杆菌在右前臂和右手姆指,注射帮助放松这些区域的紧张肌肉。她现在更多的使用右臂,右臂也能张开更多。
今年春天,莎福妹做了一个基础的神经测试,医生认为她的移动不是一个典型的脑瘫病人。医生认为除了脑瘫还有其他的事。但鉴于她的年龄,很难说还有什么其他问题。一个内科医生认为她有很小的癫痫,使得她经常摔倒。八月,又看一个儿童神经科医生,安排九月做一个MRI测试。直到MRI结果出来前,她的儿科医生不想去揣测她的状况。医生会做一系列的全面的测试来评估她的状况。
总之,莎福妹以她的状况来说,做的很不错了。每个医生和理疗师都认为她有很大的潜力进步! 她是一个非常坚持的坚决的小女孩,这会帮助她进步。
莎福妹很高兴成为家庭的一员,如果有家庭成员离开,她会盼望他们回家。她也喜欢告别时挥手,吻别,拥抱,(如果谁忘记了,她会哭)。她喜欢和姐姐们玩,心情好时,她会对她们示好而且乐于分享,她爱她的父母,现在很黏我们两个。如果让她选,她会让妈妈照顾她和上床。她很骄傲的告诉别人我们是一家,她也喜欢给新朋友们看妈妈钱包里的她和姐姐们的照片。当她受惊吓时,她会找到父母寻求安慰,她来找我们满足她的需要。她称我们妈妈,爸爸和姐姐。她也时常叫我们的名字。她喜欢被父母抱着,向每位家庭成员表达爱。
在专业治疗和学期班,她的精细动作有进步,通过画一个十字,一个圆圈,棍人(评估精细动作所使用的标准符号)。她使用剪刀也有进步,她刚来时完全不会用。现在她可以剪了,尽管是在帮助下剪完一张纸。她还可以把珠子放入管子,这也是她刚来时做不了的。
莎福妹喜欢吃,和姐姐们玩,洗澡,在公园玩,玩沙盒,骑脚踏车,画画,玩娃娃,玩电子的和能发出声音的玩具。她开始上游泳课,学习骑三轮车。她喜欢看书,听故事。也喜欢音乐和跳舞,她喜欢开跳舞聚会,和 ABBA乐队 的歌妈妈咪呀
我们喜欢莎福妹的聪明,对世界的好奇,她的朝气,和爱嬉戏的性格。她的笑可以点亮房间,她笨笨的幽默感和快乐的天性。
2015
9月,莎福妹开始全天上幼儿园,在家附近的小学。大姐上三年级,二姐上一年级。这是三个孩子的新学校。两个姐姐之前的小学不适合莎福妹,因为有许多高台阶。因为很多原因,不能让她们上不同的学校,所以从今年秋天她们上新学校。两个姐姐怀念之前的学校,但对变化保持乐观。
莎福妹被批准接受特殊教育服务,从她入学的第一天就开始特殊教育计划,她会加入正规的幼儿园班级,每周会接受60分钟的个人写作辅导。会有成年人帮助她上厕所,吃饭,和过渡。她会有额外的时间过渡到大组。今年会有职业治疗师在教室给她做评估。
莎福妹的新学校知道英文是她的第二语言,会有额外的辅导给她,以便让她融入正常的班级。我们已经见了她的课余辅导员,他们会满足她的需要。
莎福妹对英文的理解成指数极增长,我们可以和她沟通我们的指示,她能很好的回应。有时她的行为像个蹒跚学步的儿童(尤其是累的时候),妈妈和爸爸已经学习去发现这些信号,并相应的调整指令。在这五个月后,她可以说完整的英文句子。
非常感谢你对莎福妹的关心。我们现在忙于照顾她和她的姐姐们,但我们会和你保持联系。

  • 妹妹坐骑
    妹妹坐骑
  • 家人
    家人
  • 如此看来还是很淑女的
    如此看来还是很淑女的
  • 笑容还是那么熟悉
    笑容还是那么熟悉
2015-1-26: 宝贝5岁了

寻找幸福的未来

 就这样,悄悄的、偷偷的、默默的看着你远去的身影,从此你便踏上幸福的旅程……

  • 我就在你身后,可你却不知道
    我就在你身后,可你却不知道
2014-9-7: 宝贝4岁零8个月了

我想要的,就是你给的

         莎福妹现在已经四岁零八个月了,来自福建省。20115月份来到天使之家,在天使之家生活了三年多,漫长的等待终于等到了希望。92日,收到收养父母寄来的相册和一封信。听说妹妹有家庭的消息时,我们都不太相信,也不敢确定。脑瘫的孩子找收养家庭很困难,而且对于近5岁的脑瘫患儿来说更是难上加难。所以每次被收养孩子的父母来探访的时候,我们会努力的推荐这些孩子,希望他们看到孩子的可爱之处,可以帮忙在国外寻找合适的家庭,所有的努力终究有了一个美好的结果以及一个孩子美好的未来。

       摘自信中部分内容:“家里有两个大哥哥已经长大独立,在别的城市居住,还有两个姐姐也是从中国收养的,家人们都等着见你。我们有很好的医生和理疗师,针对你的右手和右脚的情况会继续为你提供治疗,两个姐姐每周都会去中文学校,你也会和她们一样,妈妈也在学习中文,这样就可以更好的和你沟通交流了……”

       一千多个日日夜夜,对于脑瘫孩子来说,从会坐到会走路,要付出多少辛苦,承受着多少痛苦,抵制多少和小朋友一起玩耍的诱惑才能换来不同角度看这个世界。

        妹妹偶尔会很执拗,会坚持想要一样东西,这是我们比较担心的一点,所以这两天总是拿着她爸爸妈妈的相册给她看,和她讲“爸爸妈妈喜欢妹妹和小朋友们一起分享玩具、食物……”希望等爸爸妈妈来接她的时候能够很快融入到家庭。我们不断强调喜欢、希望她能做到的事情,要给孩子一份信任,相信孩子能够做到。

        妹妹除了一份固执,更多展现给我们的是阳光、开朗甚至想哭就哭、想笑就笑,需要什么就要什么、不掩饰,喜欢什么就称赞什么、很直白,这一份真诚虽不是智慧,但它有时放射出比智慧更诱人的光芒。“有两片树叶,一片给你,一片给我”一片很普通的叶子对于妹妹来说是一个装饰品,是一个拿在手里一整天珍惜的东西。“孩子会给你一份感动,一份坚强”志愿者佳佳说这是她从孩子们身上学到的。

       在未来的、大概半年之久的等待中,我们和妹妹一起努力,希望展现给爸爸妈妈最好的一面,可以更好的融入家庭!

      再此也要感谢虹彩清新(北京)教育咨询有限公司为天使之家义务的提供培训,针对这些特殊孩子的教育,给了我们很多指导与帮助。除了医疗与养育,更多的是指导我们如何与这些孩子交流,我们应该怎样表达才能更好的利于孩子的身心健康发展。我们与孩都在改变着!

 

  • 一个相册和一封两页的英文信
    一个相册和一封两页的英文信
  • 居住的房子
    居住的房子
  • 厨房
    厨房
  • 两个姐姐为妹妹画的画
    两个姐姐为妹妹画的画
  • 两个姐姐
    两个姐姐
  • 你的小床
    你的小床
  • 爸爸妈妈和两个姐姐
    爸爸妈妈和两个姐姐
2014-5-26: 宝贝4岁零4个月了

健谈风趣的莎福妹

 莎福妹在天使之家将近3年的日子里,她坚持每天的康复训练,在老师的耐心陪伴和她坚强和的毅力之下,由刚开始没有一点支撑的力量,慢慢的可以依靠着墙壁站很短的时间,再到可以摆脱辅助物自己站住,渐渐的可以站稳了并且可以慢慢的拖着脚在平坦的路面向前移动。这对于妹妹来说是一个质的飞跃,2013年下半年莎福妹在物理康复的同时又接受了中医的针灸,妹妹走起路来也是越来越稳了,现在可以伸出脚迈过一个台阶,走路的速度也快了许多!但是右手的可以握住一些较小较轻的物体,并且手臂可以举过头,但是手的精细动作还是不够,相信妹妹会越来越好的。

莎福妹在天使之家,她的饮食起居康复,都按作息时间和康复计划进行。每天三餐:米饭、面条、包子、饺子、加餐(水果,酸奶,睡前喝水或奶)。妹妹是个不挑食的孩子,能吃能睡,所以长得胖乎乎的,很可爱。

  妹妹也是个很乐意和人交朋友的孩子,很乐观。   可以自己走路,可以自己上下楼梯,会自己吃饭,自己穿鞋,自己上厕所。

   莎福妹有很好的记忆力,老师每次给小朋友们教的儿歌,她都会很流利的背下来,只是咬字不是很清楚。上课也积极主动的回答问题。她很会唱歌,还有背诵儿歌。

莎福妹很有礼貌,在中医院扎针灸,时间久了那里的爷爷奶奶都熟悉了,每次去她会轮流给他们打招呼问声好,大家都非常喜欢她。有熟悉的志愿者来了,他很会攀谈,开口第一句“阿姨/姐姐,你来啦?你的裙子挺漂亮的……,接下来就会问东问西!”

像我们这种群居环境的孩子,不可能做到一对一的照顾和关注,孩子们往往心理都很缺乏被爱,茫茫人海中眼神是迷离的,眼神的翅膀在途径的岸边只是停泊片刻,漫无目的的漂泊,心灵早已疲惫了。莎福妹性格相对于要外向一些,她喜欢和人聊天,一系列的为什么会排着长队求解释,或许这样也是吸引别人眼球去关注自己。她可以把自己想说的话讲出来。

孩子的世界很简单,但往往简单的让人无能为力。期待有双大手能递给她一支五彩的画笔,为童年的记忆涂上喜欢的颜色。


2013-9-15: 宝贝3岁零8个月了

莎福妹成长报告

        莎福妹在天使之家,她的饮食起居康复,都按作息时间和康复计划进行。每天三餐:米饭、面条、包子、饺子、花卷、面包、蛋糕各种蔬菜,肉类,营养搭配。上下午各加餐(水果,酸奶,睡前喝水或奶)。妹妹是个不挑食的孩子,能吃能睡,所以长得胖乎乎的,很可爱。

       妹妹也是个很乐意和人交朋友的孩子,很乐观。现在身高97cm、体重14.6kg、牙齿20颗。

      动作发育:可以自己走路,但是脚抬的不高,容易摔倒。又因偏瘫的问题,左侧要带动右侧走,走路时身体易歪,遇到道路不平就很害怕,不敢走路,若是有人稍加协助,拉着她的右手走,她会走的比较好。可以自己吃饭,喝水。自己去厕所,但坐马桶时需要协助。

      语言、社交:可以表达清楚自己的需求, 很会和大人聊天,只要是别人帮了她或是给了她所需要的物品,她会很礼貌的说声“谢谢”。还有一件更让人对他刮目相看的事情,一次我们的一位志愿者拿着吃的,陪她走路---------实际是训练他多走路,但一直让她一圈一圈的走没给她吃的,走了几圈以后她突然说:“你觉得这样有意思吗”。妹妹也很会和人打招呼,表达自己的心意,若是某位姐姐或老师两天不见了,再回来时她会 老远就喊:“姐姐,这几天你干什么去了,我想你了”。这样的孩子谁不喜欢。

     认知:莎福妹也有很好的记忆力,老师每次给小朋友们教的儿歌,她都会很流利的背下来,只是咬字不是很清楚。上课也积极主动的回答问题。精细动作差。

 

 



2012-10-14: 宝贝2岁零9个月了

妹妹已经能独自走路了!

在经过大量的严格的甚至说是有点不近人情的康复训练之后,我们的脑瘫女孩莎福妹奇迹般地可以自己走路了。回想起妹妹康复的点点滴滴,期间充满了艰辛与痛苦,好在所有的努力都有了回报,看着孩子一步一步挪动的身影,每一位参与妹妹康复的工作人员心中充满了无语伦比的幸福感与成就感。祝福妹妹……

 






2012-3-17: 宝贝2岁零2个月了

认知和语言能力都有提高

随着时间的推移,莎福妹出落的越来越聪明了,她的认知能力和语言能力都有很大的提高。见到来访的志愿者,她都会有礼貌的打招呼:“阿姨来啦”。


2011-11-8: 宝贝1岁零10个月了

莎福妹的行动能力明显增强

以前福妹的身体状况是只能坐在原地一动不动,经过一段时间的康复训练,现在,她可以自己坐着往前移动身体了。这个动作对于普通孩子来说,似乎是个微不足道的动作,但是对于福妹来说,却孕育着里程碑般的希望。
 




2011-7-15: 宝贝1岁零6个月了

爱笑,招人喜欢的“圆圆”

见到莎福妹,总是想伸手去抱她一抱这个小美女,她那圆圆的脸蛋上总是会给你一个甜甜的微笑。